Whole tool
NICE NG197
Shared decision making (2021). Collaborative process, balanced options, support to ask questions.
About
gendr is an independent, non-profit resource. It is built by clinicians and people with lived experience, to NICE shared-decision-making standards, for adults waiting for NHS gender services in the UK.
gendr is a self-paced companion for the period between referral to an NHS adult Gender Identity Clinic and your first appointment. It walks through eight steps, orientation, referral and waiting, assessment, social transition, hormones, fertility, surgery, and lifelong health, and at each step it helps you understand the choices, clarify what matters to you, and prepare your own questions.
It does not assess, diagnose, recommend, or steer.
Adults (18+) in the UK who have been referred to, or are considering referral to, an NHS Gender Identity Clinic. The content also serves partners, family members, and clinicians who want a current, balanced overview of the adult pathway.
It is not for children or young people. Under-18 services follow a separate clinical framework which is out of scope.
Method
Three established frameworks operate at three different scales, they don't compete, they nest.
Whole tool
Shared decision making (2021). Collaborative process, balanced options, support to ask questions.
Each step
Team talk → option talk → decision talk (Elwyn et al., BMJ 2017). The architecture of every page.
Each decision
Benefits, Risks, Alternatives, do Nothing, the portable script for your appointments.
Content development follows the International Patient Decision Aid Standards (IPDAS) and is designed to be assessable against NICE's standards framework for shared-decision-making support tools (ECD8, 2021). See the clinical brief for the conformance checklist.
Principles
Every option, including waiting, declining, or stopping, gets equal care and depth. The tool's authors never tell you what to do.
The adult evidence base is largely observational and rated low-to-moderate certainty. We say so, and we show the ranges, not the headline.
You are the expert on your own life. A crisis-support route is always one tap away. We never delay signposting to wait for a feature.
We don't assume a binary destination, a single narrative, or a single right answer. Non-binary and individualised goals are treated as ordinary.
Target reading age 9–11, defined terms, natural frequencies for numbers, no jargon without an explanation in line.
Every page is dated and versioned. We revise when the NHS England adult specification, RCPsych guidance, or the EHRC guidance changes.
Privacy
gendr is designed so your reflections, values, and questions are local to your browser. Nothing is sent to a server by default. You can export a printed copy for your appointment, and you can delete everything with one click on the My notes page.
We treat gender history and health information as the special-category data they are under UK GDPR and the Data Protection Act 2018. We apply data-protection-by-design: a clear lawful basis, data minimisation, transparency, security, and adherence to the Caldicott principles. A Data Protection Impact Assessment is maintained for the tool. If we ever introduce a feature that shares data with a clinical team, it will be opt-in, revocable, and clearly explained at the point of capture.
The site uses no third-party analytics or advertising trackers. The fonts are loaded from Google Fonts; if you would like a version without that dependency, contact us.
Accessibility
The site is keyboard navigable, supports screen readers, respects "reduce motion" preferences, never conveys information by colour alone, and uses text contrast that meets WCAG 2.2 AA at minimum. The base reading age is around 9–11. Printable, offline-friendly versions of each step are available from the step's footer.
If something isn't working for you, please tell us. We treat accessibility issues as bugs to fix, not feature requests.
Partners and sponsors
gendr is an independent, non-profit project. We accept tasteful, clearly identified sponsorship from organisations whose work is consistent with our principles, trans-inclusive primary, sexual, mental and gender-affirming healthcare; lived-experience advocacy; and academic or NHS partners. Sponsors appear in a single line at the foot of the site and have no editorial influence on the content of the tool.
If your organisation would like to support gendr, or fund a specific module (for example, fertility content or sexual-health resources), please get in touch. We publish a transparency note for every supporter.
A note on what this is not
gendr is not a clinical service and not a substitute for one. It does not diagnose, prescribe, or provide consent for treatment. If you are in crisis or need urgent help, please contact your GP, NHS 111, the Samaritans on 116 123, or 999 in an emergency.